In alignment with the INTEC objectives, this workshop aims to unite patients’ organizations, researchers, and medical doctors to review and explain newly published research on diseases associated with ectopic calcification and ossification.
Doelgroep
Patients
Programma
- 14 - 14.15 uur | Welcome - Prof. Olivier Vanakker, INTEC Coordinator and Prof. Leonor Cancela, Organizer
- 14.15 - 14.45 uur | Pseudoxanthoma Elasticum (PXE) - Prof. Olivier Vanakker, Ghent University Hospital/Ghent University, Belgium
- 14.45 - 15.15 uur | Generalized Arterial Calcification of Infancy (GACI) - Prof. Frank Rutsch, Muenster University Hospital, Germany
- 15.15 - 16 uur | Ectopic cardiac calcifications associated with Paget’s disease of bone - Dr. Laetitia Michou, University of Laval and Hospital, Quebec
- 16 - 16.15 | Break
- 16.15 - 16.45 uur | Fibrodysplasia ossificans progressiva (FOP) - Prof. Frederick S. Kaplan, University of Pennsylvania School of Medicine, US
- 16.45 – 17.15 uur | Patient Organization: PXE and Rare Diseases, Portugal - Marta Jacinto
- 17.15 – 18 uur | Round table discussion
Presentations are 20 minutes plus 10 minutes for discussion
Praktische informatie
For more details and any questions please contact: Leonor Cancela - lcancela@ualg.pt
